Get help from the cancer team.
Develop trust in and get help from your team of cancer experts. Social workers, nurses, doctors, and others who are part of the health care team can help parents understand the range of emotions that are normal. Experts can also help you learn new skills, such as relaxation and stress management. Chaplains or child life specialists may be available to work with families of children with cancer. Help is available for you and your entire family, but you might have to ask for it.
Parents and other adults who care for the child can often handle their feelings better if they take care of their own needs. It’s easy to neglect things like eating, sleeping, exercising, and taking breaks from providing care. But these things are especially important to help parents be able to care for the child. It also reassures the child that some routines are being kept and that the adults are OK, despite the stress of the child’s illness.
When the parents and other important adults take care of themselves, it reminds the child that self-care routines are still important. Parents and other caregivers may need to be reminded to see their family doctors for their own personal health problems and concerns.
Involve others and get their support.
Grandparents, aunts, uncles, and other loved ones often have feelings much like those of parents and may struggle to manage many of the same emotions. They often cope better. It usually helps them when they get accurate information and are called on to give practical help. Team members can also help them discuss and handle their feelings in ways that support the parents and the child.
Sometimes, parents want to shield certain family members from the news of the diagnosis because of concern about its emotional impact. The health care team can help parents who must share bad news while being sensitive to the special issues of a family member. In general, secrets in a family tend to shut down communication rather than open it up. This tends to keep the family from working together as well as it could, at a time when it needs to pull together to cope.
Feelings often just appear whether we like it or not. But how we choose to express them is generally under our control. Reactions to a major life crisis, such as the diagnosis of cancer in a child or teen, are upsetting and painful, but natural. Most patients and family members express their feelings and manage them the best they can. Parents can help their child by showing that they are not ashamed or afraid to show what they feel. They can also help their children by encouraging them to express their emotions and try to keep focusing on moving forward.
Get help from other sources.
Families that can be flexible and can call on lots of support from friends and family tend to cope better. Families that might need extra help are those with problems in more than one area, such as family relationships, the marriage, and finances. Families with only one parent or caregiving adult may also have trouble balancing demands of the child’s illness with the needs of other family members. If this is your situation, talk with your cancer team’s social worker as soon as you can. The cancer team may be able to refer you to extra sources of help in your community or at the cancer center.